Lynnea had a good day in general. This morning she managed to untape much of the tape that was holding her breathing tube in place, so it had to be retaped, which she absolutely hated. She also had a GI study done to make sure that her feeding intolerance is not due to a gastro-intestinal problem. It's not. Everything looked normal from a GI standpoint, so her feeding intolerance is most likely due to the narcotics she's on and/or poor heart function, which is what everyone had already suspected, but it's always good to rule things out. The rest of the day she was happy and playful when she was awake. Also, her PEEP was weaned to 10, and she has done fine with that so far.
This evening, I took Ashlyn to another HopeKids event. She and I, along with her uncle Tim, her aunt Christine, and her cousin Joanna, went to see the play Click Clack Moo, Cows that Type. Ashlyn seemed to really enjoy getting to spend some special time with Mommy, and I certainly enjoyed the time with her as well.
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Tina and family, I want you guys to know that no matter what happens you did everything rite. You love our angel as much as you all can. Give her some special hugs from us and keep letting her know that she is loved as you all are in a special way. God Bless. I know our lord has his reasons. Bev and Joyce
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