Sunday, August 30, 2009


Ashlyn and Lynnea both enjoyed having a picnic at the park this past week. Ashlyn has decided that playgrounds are great things! Lynnea loves being outside because there is so much to look at.
Lynnea has also been sitting up mostly unassisted in the past couple of days, which is very nice to see.

Monday, August 24, 2009

Still at Home :-)

We are thankful for another week at home together as a family. Next Monday Lynnea has an appointment at the U of M with Dr. Gruenstein (her cardiologist). This is just a regular follow-up visit, but it's been awhile since she's had one, so we are hoping that there aren't any unpleasant surprises. Her next surgery has been scheduled for Monday, Sept. 21, at 7am. As always, we kind of expect the date to change several times before she actually has surgery, but that's just the way things go.

In the past week Lynnea has learned how to clap. She gets so excited and looks so proud of herself when she does it; it's pretty cute. She still won't allow any food to go into her mouth without gagging, but we're still trying. She accidentally rolled herself onto her tummy on Saturday; she stayed there without any problems until she realized she was on her tummy, then she got mad and screamed about it. She also looked at me as though I had done something terrible to her, even though that time I wasn't the one that put her on her tummy. She eventually calmed down enough to roll back onto her back, then she was fine.

Tuesday, August 18, 2009

6 Weeks at Home!

We've hit the six week mark at home now! There have been many moments over the past nine and a half months when I questioned whether we would ever get to stay home this long, and now here we are. We still don't have any idea about when Lynnea will go in for her next surgery -- we're having a difficult time getting a hold of Dr. St. Louis. Last week Lynnea caught a little bit of a cold, but so far, we've managed to handle it at home. We're still giving her nebulizer treatments once or twice a day, and our home health nurses continue to monitor her for increased work of breathing. She also seems to be teething. She's been more irritable than usual at night, drooling a bit, and sticking everything she can get into her mouth (except for spoons and food, of course), so I'm expecting more teeth any day now.

Sunday, August 9, 2009

New Record!

Lynnea has now been home from the hospital for 33 days, beating our old record of 31 days! This is a pretty exciting accomplishment! We have had a wonderful month at home. Ashlyn and Lynnea get along so well, and it's good to see them together. Both girls have been doing fun things this past week. Ashlyn has been enjoying rubber stamps -- she's a scrapbooker in the making, and she also enjoys playing dress-up -- the best thing she came up with this week was wearing Corey's socks because she was convinced that they fit her. It was pretty funny. Lynnea has been sitting in the high chair, mostly playing with toys while she's in there, but we have started offering her solid foods. She's tried pears and rice cereal (I think...I'm not really sure if she actually swallowed any of the rice cereal, but we offered it to her). She doesn't like eating solid foods, and she still gags anytime anything comes near her mouth, but we're taking it slow, and hopefully she'll figure this whole eating thing out sometime soon. We also tried putting her in her excersaucer for the first time, and she seemed to like that. During physical therapy this week, her therapist put her on her tummy for some tummy time (which she always hates), and Lynnea very promptly rolled herself back on to her back completely unassisted. She did this a couple of times, which is very exciting. She is also getting better at sitting up -- she still requires some support, but she's making a lot of progress.

We still don't have any idea when she will have her next surgery. We've tried to call Dr. St. Louis several times, but still haven't been able to contact him.

Wednesday, August 5, 2009

Summer Fun

Today Ashlyn and Lynnea enjoyed playing outside. Ashlyn played with her ball, played with her new Frisbee, and helped rake the lawn. Lynnea enjoyed swinging -- this was the first time she has used the swing in the backyard. She enjoyed it so much that she fell asleep and took a 45 minute nap in the swing.

Saturday, August 1, 2009

9 Months Old

Now Lynnea is nine months old. She weighs 15 pounds. She rolls side to side, but she doesn't roll over. She's starting to sit up with support, but she can't do it on her own yet. She's starting to tolerate being picked up from under her arms (rather than scooping her up like a newborn), and she tolerates being held up over my shoulder, which is a step towards her being more tolerant of "tummy time." She coos, and is starting to try to make a few different sounds, but she's not quite babbling yet. She's making progress.

We've been approved for private duty nursing, and since we decided to wait to have surgery, our nursing services began on Thursday. We have two nurses assigned to Lynnea's case, and they both seem to be really good with her. We will have a nurse here to help out with Lynnea ten hours a day, Monday through Friday. Ashlyn loves this, and is very happy that we have a nurse here all the time to play with her. Yes, even though we've tried to explain to Ashlyn that it's Lynnea's nurse, Ashlyn really seems to think that the nurse is her own personal playmate. Ashlyn especially enjoys playing "doctor" with the nurses, which is really funny to watch. Until the novelty of having someone around all the time wears off, I'm sure the nurses will spend a lot of time playing with Ashlyn, which is fine because it seems to make Lynnea more comfortable to see Ashlyn interacting with unfamiliar people; Lynnea is more likely to accept a new person if Ashlyn approves of them first.