Lynnea remained fever free today, and her white blood cell count remains down. Dr. St. Louis has not scheduled surgery yet, but he is hoping to do her aortopexy early next week -- he is trying to coordinate with another doctor on this because he wants to do another bronchoscopy at the same time he does the aortopexy, so we are waiting to hear when they will both be available to do this.
There's not much new with Lynnea today. They decided to add Zyprexa to the mix of medications she is on, which is something that I was very hesitant about, but in the end conceded to allow them to do it. Zyprexa is an anti-psychotic medication (mind glue) that they felt that Lynnea would benefit from because they are afraid that she has developed delirium related to long-term sedation. The problems with this are that there is no good assessment tool to use to diagnose delirium in infants, and Zyprexa is a relatively new medication (and very rarely used in an infant population) so very little is known about any sort of long-term side effects, particularly with infants (no one has any clue what this drug might do to a developing brain), but the negative side effects of leaving potential delirium untreated seem to warrant the use of the medication.
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1 comment:
Hi there, I have been following this blog after reading a bit about Lynnea on Megan's Facebook page. I just wanted to let you know that after recently becoming a mother myself I can not imagine what you are going through. The constant worry that comes with a healthy baby is a lot for me as a first time mom, and you show such strength and poise in dealing with Lynnea's condition. God really blessed her with wonderful mother. She is such a fighter, and she is always in my prayers.
Nikki McDonough
(a former co-worker of Megan's)
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