Friday, October 9, 2009

More Disappointing News

Lynnea had her heart catherization this morning. The procedure itself went fine, and Lynnea is doing OK. Dr. Gruenstein performed another cutting balloon dilation on her left pulmonary vein. He continues to have high hopes that repeating this procedure a few more times may open up her pulmonary vein enough so that she can eventually have the Glenn procedure done. There was some narrowing of her aorta that has been a slight concern for a while now (so, not a new problem) that had gotten worse. So, Dr. Gruenstein decided to put a stent in to open the area up. There was also another spot on her aorta that was narrow that had not been narrow before. This spot is near the place where Dr. St Louis merged her aorta and pulmonary artery when he did the Norwood procedure, and it is not a place that can be ballooned or stented open. At some point, probably in the relatively near future (it would need to happen before she can have the Glenn, which of course, is still unscheduled so it's difficult to have a clear idea of when it would actually happen) this would need to be addressed surgically. Also, today's catherization showed that she is beginning to outgrow her B-T shunt. Dr. Gruenstein told us that it will probably be necessary to replace her B-T shunt with a larger one some time soon; he's hoping that Dr. St. Louis will be able to replace the shunt and repair her aorta at the same time.

Lynnea will be spending the night in the PICU, and as long as she remains stable, she will move back to the general floor tomorrow. They were able to extubate her a few hours after her cath, and she is only on a little bit of oxygen support. We will be staying in the hospital until Lynnea is able to tolerate her feeds again.

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