Playing Outside

Today the weather was finally nice enough to take Lynnea outside. She enjoyed this. There are a couple of swings outside of the hospital, and Ashlyn wanted to swing, so we let her. When Lynnea saw Ashlyn swinging, she pointed emphatically at the swing as her way of demanding to also get a turn, so we also let her swing. It was really cool to see her out and about doing "normal" kid things for the first time in a very, very long time. The time outside was a lot of fun for both girls, but completely tired Lynnea out.

Today was a day of more medication rearranging, and they are close to having us on a manageable medication schedule to go home. The plan is to discharge us on Monday afternoon. Lynnea is still off from oxygen, though her SATs have been pretty low all day, and during her nap this afternoon, she dipped much lower than she normally does when she sleeps (normally when she sleeps, her SATs are actually noticeably higher than when she is awake, which is a little unusual, but that's how she has always been). For now, nothing is being done about this, though they may decide to do a chest x-ray in the morning just to make sure everything still looks OK. The only "treatment" would probably be to put her back on oxygen, which shouldn't change their plan to discharge us on Monday since we can go home with her on oxygen if necessary.