Probably Moving to the Floor Tomorrow

Lynnea had a wonderful day today.  She was in a happy, silly mood most of the day -- lots of smiles and giggles.  During her nap this afternoon, her nasal cannula came out of her nose while she was sleeping, and since her SATs were OK without the extra oxygen support, we kind of "forgot" to put it back on when she woke up, so she has been on room air since then, and she continues to do OK.  She is also off from all of her IV drips, which means we should be able to move to the floor tomorrow, unless something unexpected happens overnight.  Lynnea continues to tolerate her G-tube feeds just fine -- she is no longer receiving anything through her J-tube, which is great!  Now we'll work on transitioning her from continuous feeds to bolus feeds like she was on before this hospital stay.  We have also been working with the speech therapists here at the hospital to help Lynnea overcome some of her oral aversion and learn to eat with her mouth.  In the past, she has gagged at the sight of a spoon, so I am very excited that she has been willing to take some of her thickened water off from a baby spoon very willingly the past couple of days.  The other day she also dipped her finger in some frosting on a cookie that I was eating and she managed to put it in her mouth and not gag on it (in the past, any food in her mouth has made her gag), so this is impressive progress. 

This afternoon she got to go on another wagon ride.  We were once again disappointed that the weather outside was too cold and rainy to bring her out.  Instead of going outside, we brought her down to the second floor, and let her play the piano that is in the lobby.  She thought that was fun.  Fortunately there weren't many people around because Lynnea could use a few more lessons before she plays for an audience, but it was still very cute to see her reaction when she pushed the keys and they made noise.