We had another good day at home today. This morning we went for a walk and hit a few garage sales. The girls seemed to enjoy this. I think they both get bored when we stay home all the time, but it is hard to bring Lynnea out because she gets so tired so quickly. This evening Lynnea helped comb her own hair after bathtime, and then she had lots of fun playing peek-a-boo with Ashlyn. Both girls were very giggly. It was fun to see.Lynnea had a bit of a fever overnight last night, but her temp stayed down during the day. She kept her SATs up all day without any extra oxygen as well. We started a new medication for her this morning (a new diuretic; hopefully we can get rid of some of the other ones she's on), so beginning tomorrow morning, for the next few days, she will need to have her blood drawn to check her electrolyte levels to make sure they remain stable. I know she will hate this, but we still opted to do this at home rather than stay at the hospital while her medication is being adjusted. We also have 24/7 nursing in place for another week, which is chaotic due to our homecare agency not being very good at getting the hours covered in any organized sort of way.
1 comment:
Like the smiles! It has been great the past few days to see Lynnea so happy. So many prayers have been answered- she is at home! We do not miss the trips to the hospital. Now our prayers are that she gain strength and can have more days off the O2.
Sorry this comment is arriving a day late- it did not go through last night- Love Mom
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