Wednesday

Most of the day, Lynnea was happy and full of smiles, though she still seems to need some Tylenol for pain. They tried to take her off from her oxygen today. . . it didn't go very well. Her saturation levels dropped into the 50's (and flirted with the 40's) and didn't show signs of coming back up on their own, so the oxygen was turned back on. The doctors don't have any great explanation for why she still seems to need the oxygen, which is frustrating for them, and for us. There is still a chance that her low saturations are due to her retaining fluid (she is extremely sensitive to fluid retention), so it might just take a couple extra doses of some diuretics to even things out again. There was some talk of possibly going home on Friday, but, of course, that will only happen if Lynnea is no longer needing oxygen support, so we're not getting our hopes up too high yet. They also started her back on her bolus feeds today -- two hours on, one hour off. She seems to be tolerating that just fine so far. Tomorrow, after her CT Scan (she can't eat anything for six hours before the scan because they will be sedating her for it) we will try increasing the rate a little on the bolus feeds and run them over an hour and a half instead of two hours.