Lots of Appointments

Today I took Lynnea and Ashlyn (with lots of help from Megan) to the U of M for some doctor appointments. We started our morning off with Lynnea's echo and Dr. Gruenstein appointment. Dr. Gruenstein said her echo looked good (the same as the last one). He is hoping to be able to do another heart catherization on her the first or second week in June, and then go from there to decide exactly when she should have her next open-heart surgery. While we were in the hospital last week, Dr. Kochilas seemed to think that Lynnea wouldn't need the next surgery until later in the summer (July or August), but Gruenstein is thinking it should be earlier than that. . . of course, the final decision will be from Dr. St. Louis, and as far as I know, no one has has asked him when he would like to do this yet, so we still don't really know when it will happen.

After we finished up with Lynnea's early morning stuff, we moved on to Ashlyn's echo. Yes, we also decided that it would be a good idea to have an echocardiogram done on Ashlyn because, even though no one has ever heard a heart murmur on her, she has been turning blue around her mouth and eyes since she was tiny, and now seeing all of Lynnea's problems, there was enough reason to have one done as a precaution. Unofficially, the echo tech said that she's fine, which is a huge relief.

Then, this afternoon, Lynnea had Physical Therapy and Occupational Therapy. Both went much better this time than they did a month ago when we were in. She's making great progress. Now, the big thing is getting in some much needed tummy time (which she absolutely hates) before her next surgery.