4 Months Old

Lynnea is now 4 months old. Her weight today was 11 lbs. but some of that is water weight because she's been retaining fluids again. They changed her diuretics from every 6 hours to every 4 hours to help with that. This afternoon her nasal cannula kept coming off, so finally the nurse just left it off to see how her saturations were without it, and when the doctors did rounds this afternoon they said she could keep it off as long as her saturations remained OK. So far it has stayed off, which is really nice because she absolutely hates having it on. She had a chest x-ray this morning, and her lungs looked "wet" again. This concerns the doctors, but other than increasing her diuretics, there's not a whole lot they can do about it right now. They also decided this morning that they want her to run a 6 week course of antibiotics; she has been on one consistently for about 2 1/2 weeks now, so the plan right now is to just keep her on it for another 3 1/2 weeks. Unfortunately, that means that we will be in the hospital at least that much longer because, even if she would stabilize enough to take home, the antibiotic needs to be given through an IV (in this case her PICC line) and I refuse to go home with any IV lines in. I can handle her feeding tube, and I could handle her needing to be on oxygen at home if absolutely necessary, but I have to draw the line at IV's. So, we're staying in the hospital for the full course. Other than that, not a whole lot has changed since yesterday; she's still running a fever, and this morning she had a long coughing/gagging fit and had to be suctioned again.